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  • Effects of GBS over 2 years later
    Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
  • Forums Archive - GBS|CIDP Foundation International Forums
    A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
  • Axonal Guillan Barre (AMAN) - GBS\|CIDP
    Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
  • Average time for full recovery? - GBS\|CIDP
    So anything is possible There may be an average period of recovery of the motor nerves for GBS sufferers which is less than 2 years, but for muscle recovery, I think that the average recovery for those who had severe GBS, the average recovery period must be several years
  • Community Forums - GBS|CIDP Foundation International Forums
    A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
  • For those who get regular IVIG infusions, how often do you . . . - GBS\|CIDP
    Just out of curiosity, for those who get regular IVIG treatments for their CIDP, how often do you get them? Once a week, once a month? Do you feel that such a maintenance keeps symptom free or something close to it? Thanks, Bryan
  • Longest and shortest FULL recovery times for GBS
    2 years on from gbs and i still have fatigue that can bowl me over some days ,still cant run , just starting to be able to bend a little at my knees , muscle cramps , when im tired my body feels like its vibrating inside, slur words when im tired, hand tremors mainly when im tired, cant walk long distances without my friend the crutch
  • Oregon City a GBS Cluster?
    Because GBS isn’t supposed to occur in clusters this is pretty strange, at first glance When I talked with the lady from CDC, she said Oregon City has a pretty strange looking cluster of GBS as well as a whole host of other odd health problems including Polio, measles, mumps and Scarlet Fever
  • Anemia Due To CIDP? - GBS|CIDP Foundation International Forums
    I have iron deficiency anemia and cidp too It was discovered while I was having a series of plasma exchange, I had already had several years of ivig Upper and lower GI both done–both fine I just assumed the anemia was due to losing blood monthly due to my menstrual cycle, since there was no blood loss anywhere else
  • Alcohol and Nerve Damage - GBS\|CIDP
    norb, i really don’t know for years after gbs i was afraid to take a drink for fear of who-knows-what [prolly making my difficult condition worse] anyway, when i finally went back to the occasional, i never noticed any difference i stopped my heavier drinking 10 years before getting gbs take care be well gene gbs 8-99 in numbers there is strength





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